Friday, July 15, 2011

DISCLAIMER :)

Can't sleep so I decided to give this a try.
Why a blog? Well...everyone that knows me KNOWS that I am an "oversharer" by nature. I tell people everything....even things they probably don't care about. I am the TMI queen and sometimes even share information with my friends just to get a laugh out of them or to see the shock on their face. So it's a given that I would want to share my thoughts and feelings about being diagnosed with Liposarcoma ( a rare cancer of the fatty tissue) and all about my treatments and all of the serious, crazy crap that comes with it, with anyone who will listen ( or read). But if you are going to follow me....you must read the DISCLAIMER and repeat after me.... :)

Disclaimer: I _____________ will not judge Gina for what she shares, feels or misspells. I will not mention or give a second thought to 5th grade grammar rules or punctuation. :)

I also feel like before I start....I have to warn you. I am kind of a sappy person. I am "touchy feely"....warm and fuzzy. I love my family and my friends more than anything in the world and sometimes it might get a little nauseating reading this. But I started this blog with hopes that it would help me by verbalizing whatever it is that is on my mind as well as keeping those who care about me, updated! So.....here we go!

Background: On May 10th 2011 I went in to have what was thought to be a "lipoma" or benign fatty tumor removed from my hip. These are common and very rarely anything to worry about. In fact, The only reason I decided to have it removed in the first place was purely based on my vanity because I hated the way it looked in my bikini :) So I guess you could say vanity could very well have saved my life.

Long story short ( ha ha) when I went for my follow up appointment after surgery two weeks later, I was informed that I had Myxoid Liposarcoma. It's not a day I will soon forget. Getting news that you have/had cancer is a shock to say the least. I don't think anything my surgeon told me in that office sunk in at first. In fact, I remember him saying cancer several times before I "came to" and realized what he was telling me. I still think I was in denial until he mentioned the possible treatments were ANOTHER surgery and possibly chemotherapy and radiation. Yea, that's when I lost it....

So...two surgeries and what seems like a hundred  Dr.'s appointments later....here we are :) Two months have passed and today I felt like we were back to the first day I was diagnosed. I was supposed to have my planning session to begin radiation today. But instead it looks like I am going to be having chemo before the radiation. Early into this "battle" JD and I  ( my husband, biggest fan, supporter, hot- male nurse...whatever you wanna call him) have been pretty confident about the fact that chemo most likely would not be recommended as part of my treatment mainly due to information we received from my Dr.'s and what we have researched about this cancer.

Why the change? Well, I'm not sure i understand ALL of the details, but basically my cancer cells ( tissue) was sent to Children's Mercy to be studied by a genetics expert. She was looking at the "make up" of my cancer cells to determine whether or not they have the same characteristics as "round cell" ( the fast, moving...aggressive component.) Unfortunately....today I found out that my cells DO have the same proteins (???) and characteristics of round cells. With that, and the size of my original tumor, my Dr.s are recommending Chemo and then, radiation treatments. I was surprised about this.( had a short pitty party)...but truly feel like we just need to get this show on the road and DO IT!

I'm not gonna lie...I'm scared! I have seen the movies....chemo is not going to win me any beauty pageants for sure. I love my hair, Im not particularly excited about knowing what i look like without it. Thats not my only fear though....thats just me being shallow. I know it sounds silly to worry about that when you are being treated for something that could potentially kill you....but I'm nervous that I might not be strong enough to go through this without being a big baby! It's the unknown that is scary...and Im learning slowly but surely. Even though Im not looking forward to this...I do feel extremely blessed that we found this when we did and that chemo and radiation are even an option! My prognosis is good....and for that....I am thankful!

Well, Its almost 5am...Im gonna try to put my mind to rest..
Love. Love,
Gina

14 comments:

  1. This comment has been removed by the author.

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  2. Gina...

    You have already proven that you are strong enough to take this. And when your strength runs short, you have an amazing husband & family & friends that will step right up for you because of who you are. You have loved in amazing ways & now, your blessing shall be returned.

    Let yourself feel every feeling & don't be afraid to stop & rest when your body says so. I will agree, you have some fantastic hair girl but I think everyone who knows will agree that it is not your only great attribute. You're beautiful & you will remain beautiful & you will be an example to your girls of just what true beauty & strength is. Can you just imagine how much more you will be loved, respected & appreciated when you show everyone how to handle something like this? You're already an inspiration Gina. I'm eternally sorry that this has happened upon you & will be praying for you continually. I'm alot like you in living my life as an open book & I know how easily it comes to some of us but let me be the first to commend your bravery for putting your story out there & inviting us all to come along & watch.

    I know your circle of support is enormous & I am some distance from you but if God leads you to call on me for anything, please don't hesitate.

    God bless ya girl...take that cancer & kick it!
    xoxoxo

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  3. Love you girl!!!!!!!! So glad you are doing this blog. We are with you all the way for anything you need! XO

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  4. Gina - You have every right to be a big baby here.... this is a very scary thing you're dealing with!! So whine, cry, kick, throw fits, scream... whatever you need to do to help you get through this!! We will all be right there by your side crying and screaming with you!! It just sucks that you have to go through this - my famous words.... "it's NOT fair"! You are an amazing person with a huge heart - you have an amazing husband and 2 beautiful girls to live for so I have no doubt that you will beat this - but as we know, it sure is gonna suck while doing it. I know you have alot of family and friends here and willing to help - ME included!!!! So please, please, please do NOT hesitate to ask me for any help you may need!! Lots of love and hugs to you!! Now - let's fight this fight!!!! We're all ready!! Love ya! Dana Ellison :)

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  5. Well girl, I will have to have a tissue box in hand while I read your stories! I too am here for you & your family when you need help! You are an AMAZING person & I am so blessed to know & your family! We go way back girl & I think this fight will only make us closer, if you let peoole help! It's our time to give back to you! So you just tell us what you need, & it will be done! Your girls will grow stronger watching their momma fight this battle! You are a winner & I can already see your victory dance at the finish line! Lots of love & prayers are always around you! Chin up my sweet buttercup...you got this!!!! Love ya girl, Heather xoxox ;)

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  6. Sorry about me posting as Ms. Heather! I forgot I already had signed up w/google when one of my students had a blog. They call me Ms. Heather & when I hit post comment on your blog, it listed me as Ms. Heather...well, I just edited my profile, so now you will know who I am. Again, my sweet friend, I am here for you! Prayers & love, Heather xoxox ;)

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  7. You are gonna be the SEXIEST bald lady EVER! So well written. Remind me to tell you about the time "I pulled a Brittney!"

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  8. BTW, Diary of a Mama...is Neko! I have a blog on here.

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  9. I promise to always be the best husband I can be… Thanks for being the love of my life!

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  10. I am so proud of you Gina Marie! You are an inspiration to us all! Its like the Rascal Flatts song says,
    You think your lost
    But your not lost on your own
    Your not alone
    I will stand by you
    I will help you through
    When you’ve done all you can do
    If you can’t cope
    I will dry your eyes
    I will fight your fight
    I will hold you tight
    And I wont let go!"

    However it should be changed to WE because we are all here for you! Love you friend!!! Let's beat this!!!!

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  11. I agree you have the best support system ever. Thank you Jesus that you did want to get that removed and checked it. I really believe you have found this early and can fight, fight, fight it with the best medical treatment. As my mom and Grandma used to say: "This too shall Pass" and like I said before, you will come out of this stronger than ever! I agree with the other posts, you are gorgeous no matter what and have the greatest heart and soul! My prayers are with you daily...we love you guys and really wish we were there to help in some way!! You would not like my food though because Richard says I can't cook, but I could bring you some pizza or something if I were in town! LOL!

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  12. Gina,

    You are such a strong person and you have such an amazing attitude that will get you thru this.

    Please know I will be praying for you and your family! You will beat this and you will do it with style, humor and grace!

    God be with you and your family!

    Vanessa

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  13. Gina,
    I love you so much and the most beautiful thing about you is your personality and positive attitude which is still there!
    God knows your need and will walk with you all the way. Look up Isaiah 40:31 in the Bible and make it yours.
    Take care and you are in my prayers daily as well as my church.
    Love to you and I'm so grateful you have JD and the girls (plus countless others) to prop you up and gather around you.
    Marilyn

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  14. Gina, you do not know me, and I admit I feel slightly guilty for writing on your blog but I am to share a little for you to understand why I felt compelled to write. I recently lost my hair from some herbal supplements (my vanity got in the way as well). I have been devastated. Like you I LOVED my hair, and the thoughts of losing it was probably my biggest fear. I have been an emotional disaster but I kept telling myself I'm not undergoing chemo, I 'm not looking at suffering from cancer. I saw your name on Shelly's facebook and found myself reading every one of your posts. I loved the quote, that it will NOT DEFINE me.

    I want to leave you with words of encouragement because you have been such an inspiration for me today. I bought my first wig last week. I LOVE IT!!!!!!! I have two one thats a cute little cut and one that I can wear a baseball hat with. Talk about being able to get ready quick. My hair is always fixed :)....I can go to the gym in my baseball hat come home and change to my other wig and be ready to go out for the day in five minutes. Like you said, it will come back. May you find security in your friends and family. and may you know that you touched one strangers life today and made a difference....THANK YOU !!!!!

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